Terrific Tuesday

My brain is feeling a little dumb today. I blame the lowering of the Gabapentin. In general my mood is pretty positive and happy. I’ve been forgetting little things and I feel mentally groggy. But nothing too intense.

I am having one of the best smoothies of my entire life right now. I have a banana-based smoothie every single day. I will occasionally have something else, but that is rare. Some days the smoothie is so good I can’t even believe it, other days it’s ‘meh’. I don’t know what causes the variance. Letting the bananas ripen enough before freezing them is one of the best pieces of advice I can give for epic smoothies…

Thursday — Continuing the Lower Dose of Gabapentin

I feel very out of it, but in a nice way. Like I’m in a fluffy cloud. This is mostly because I took Reyvow last night. It’s an as-needed medication for migraines. It helps a lot! I also took a Sumatriptan medication yesterday and that is probably why my fingers are impossibly numb today, yay! They’re scary numb. Good thing it’s getting up to 65° today.

Yesterday I felt a little tired and dizzy and as the day progressed my headache ramped up. I think it was because I drank a smoothie from a straw. I know… it sounds weird but I hate using straws because it always triggers a headache! I hadn’t used one in forever so I tried it again and it for sure triggered one.

Neurology Appointment

I am at a Neurology appointment where I am hopefully getting Botox. The migraine/pain clinic I’ve gone to for 2-3 years had been doing the Botox (for migraines) but suddenly my insurance won’t pay for it anymore. The person I talked to during the appointment said that I am probably getting rebound headaches from the medications I take for migraines. The Migraine/Pain Clinic says I’m not getting rebound headaches because despite what the internet says, it is actually much more difficult to get them. I have been skeptical about the amount of medication they have me taking but goodness it really helps. I am somewhat functional every day and that is a vast improvement from just 2 years ago. I still get plenty of headache/migraine activity but it is mild enough that sometimes I don’t notice it unless I actively tune into how I am feeling, and then it’s very much there but significantly more mild than in the past. They say even though it’s more mild, it is still a migraine since I have chronic migraines.

Gastroenterologist

Gabapentin is still at 600 mg. My brain felt a little dumb today, I’m sure it’s partly from less Gaba. I feel like I’m being stalked by a gastroenterologist lol. Actually she might just be a surgeon but she’s the one who did my upper endoscopy and found basically everything wrong with my stomach and everything around it. I have no interest in getting stomach surgery. I am working on figuring out what my autoimmune condition is as lately doctors have thought it might not be Crest Syndrome. I likely have a connective tissue disease and from my (not extensive) knowledge on the topic, this could contribute to the gastrointestinal issues. I am planning on getting another opinion from a gastroenterologist before I decide to go under the knife.

The office of the doctor surgeon lady keeps calling me trying to schedule the surgery… That pisses me right off. Them being so aggressive makes me want to put off surgery even longer. I’ve explained to them I am not ready for surgery any time soon, I’ve told them this this multiple times, yet I still get calls from them. They need to chill.

Doctors: To Go or Not To Go

I have no interest in a doctor acting like I have to do what they say 😅 Well… of course I value their opinion and education, and they absolutely know more than I do, but their word is not the end all be all… It’s easy to see an authority figure as someone we have to blindly listen to but frankly, we don’t! I come from a long line of people who straight up don’t go to the doctor. Most of them have met their demise… so it’s not a good idea to be like that, but we are paying doctors for their service, we can easily say, “nah, I don’t want this service from you anymore”, and that is our right to do so. I’ll get into the findings from the recent upper endoscopy and other tests in future posts, it’s a lot to wrap my mind around and I have a lot more learning to do…